Lisa Bonnema

Mom. Writer. Speaker.

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Brooklyn Update: Surgery on Friday

December 8, 2010 by Lisa

So after 4 months of waiting it out, the time has come for Brooklyn to get a shunt. We were hoping she wouldn’t need one, but her head size is continuing to grow and has reached a point where we need to intervene.

Basically, brain and spinal fluid is slowly collecting in her head, which is causing it to grow at an increasing rate. The good news is that she has never exhibited any negative symptoms due to the slow build-up, but if we don’t stop it at some point, there could be complications for her down the road. It is also a good thing that we waited as long as we did because her body is now older and stronger, which decreases the chance for infection.

So the decision was made late yesterday to have the surgery this coming Friday. A shunt will be placed in the top of Brooklyn’s head that will drain all the way into her stomach. Jeff and I feel confident that this the right thing to do, and trust that God will protect Brooklyn throughout this major surgery. What a peace to know that He is in control!

So far, it looks like the surgery will be at 3pm on Friday. We ask that you pray for complete success during and after the surgery and that there is no infection or adverse reactions to the shunt. Sometimes, the brain can go into “shock” after the surgery, which could cause seizures, so please pray that this does not happen. We also ask that you pray for Emma and Kendall, as Jeff and I will be at the hospital for about 2 days.

We also found out yesterday that Brooklyn’s foot surgery wasn’t completely successful, so she will have to have another larger surgery right before her 1st birthday, which means more casting. This was a little discouraging, but our orthopedic surgeon said the serial casting we’ve already done was completely successful in correcting her knees and her hips. Her feet also look sooo much better, so this is (hopefully) the final step in making them ready for walking! 🙂

Please know that even though the end result is not what we prayed for, Jeff and I feel God’s hands in this, and we know He is still guiding our journey. In fact, God slowly prepared my heart for this news in the last few days, and Jeff is actually feeling relief. Please pray that His peace continues to fill our hearts. We never thought we’d be taking our baby in for brain surgery, but we also feel so grateful to live in a day and age where they have so many ways to heal and help our Brooklyn.

Also be encouraged that our little rock star is thriving and doing all of her baby jobs very well! She is growing like a weed and is smiling all the time. Jeff has even gotten her to giggle a few times! Her personality is really starting shine through, and we are loving every minute of it! 🙂 Through Brooklyn, God has shown us what a precious miracle children truly are, and we feel so blessed to have a renewed perspective on life.

As always, thank you for your prayers!!! We will keep you posted on Friday’s surgery.

Foto Friday: Jammies in 3D

December 3, 2010 by Lisa

I think it’s funny how much people say the girls look alike. Honestly, I only see the differences. BUT I do see a lot of Emma in Brooklyn…much more than I ever saw in Kendall.

Anyway, I thought I’d let you all be the judges. Here are all three of my little ladies in my all-time favorite jammies. Granted, Emma is only 6 weeks old, so it’s not quite a fair comparison, but you get the point.

Have a great weekend everyone! Hope you get to hang out in your favorite jammies!

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Brooklyn, 3.5 months old

kendall pink

Kendall, 3 months old

emma pink

Emma, 1.5 months old

A Thanksgiving Testimony

November 25, 2010 by Lisa

(*This is the testimony I shared at our church service today.)

Good morning, everyone. Happy Thanksgiving!

Today, I feel God called me to tell you about something very important in my life that has filled my heart with more Thanksgiving than I knew possible.

Socks.

Yep, today I am thankful for socks. Actually, white socks with hot pink ruffles, green polka dots, and the embroidered letter “B.”

A year ago, I may have thought these socks were cute, but I never would have imagined the overwhelming sense of gratitude I would feel when I finally got to put them on my 3-month- old baby.

Such a small thing, socks. But as I have learned these past 8 months, God often reveals himself in the small things just as much as He reveals Himself in the big things—if you are paying attention, that is.

You see, 8 months ago my husband and I experienced what I guess most would say is a “big thing.” During a routine ultrasound, we learned that our third child, Brooklyn, had Spina Bifida. For those of you that don’t know, it’s a neural tube defect that affects the central nervous system. Basically, when our baby was forming, her spinal cord failed to close properly, leaving an open defect in her back that exposed her spinal cord and caused an irregular flow of brain and spinal fluid.

The news, of course, was a huge surprise. We had two very healthy, active little girls at home already. We barely knew what Spina Bifida even was, but we quickly learned more than we ever wanted to know: Our baby may never go to the bathroom on her own. A build-up of fluid in her brain could cause cognitive challenges. She may never walk.

Big, big things we never thought would happen to us. But they did, and I can honestly stand here and tell you that I have never been mad at God about that.

From the beginning, I have felt this overwhelming peace that this is part of God’s plan—or, better yet, that He was going to use it for His glory.

Even that first night, when I lay in bed, sobbing for hours and hours, I felt God was right there with me—crying. It was the worst night of my life, yet knowing that God was in control, that He knew this was going to happen, made me cling to Him and His promises like never before. My heart was broken, yes, but when the morning came, God picked me up and, as I like to say—our journey began.

What I experienced the next 5 months of my pregnancy was nothing short of awesome. Prayer after prayer answered. Brooklyn’s legs, which at one point, were not moving, started to kick in my womb. We found physicians and specialists that were among the best in their fields. I had nurses PRAYING with me at doctor’s appointments. Hundreds of family members, friends, and strangers were sending notes of encouragement exactly when we needed them. Prayers of healing were being sent up, and my faith grew like never before. God was guiding me through every day—the good and the bad. He provided my heart with constant encouragement and gave me wonderful images of Hope that will forever be imprinted in my heart. He gave me strength to share our story, but more importantly, used my weakest moments to help me understand.

It was His plan.

And then she was born. Brooklyn Hope Bonnema. I had been so anxious to meet her, to hold her in my arms. But, of course, I couldn’t at first. In fact, I wouldn’t hold her in my arms for 6 whole days. The longest days of my life.

But in those 6 days – and every day since then—I have learned to be thankful for the little things.

Like the first time I got to feed her a bottle. Yes, she was hooked up to several machines, and was lying on a portable sleeping table, but she didn’t need an IV and she was swallowing on her own. I was thankful.

Or the first time a nurse allowed me to hold her. Yes, she was carefully positioned on a foam bed that separated her from my lap, but I was able to kiss her and feel the weight of her body on mine. I was thankful.

Or the first time I got to burp her. Yes, she had to be propped up sideways because her left leg was deformed and her back was still healing from her surgery, but I could kiss her warm head and take in her sweet smell. I was thankful.

The first time we brought her home. 18 days after she was born. We were all under one roof. Finally. I was thankful.

The first time I got to wash the upper part of her left leg after her casts corrected its position. I was thankful.

The first time I saw her beautiful smile. A smile that told me the fluid in her brain was not causing major damage. I was thankful.

The first time I held her after she came out of her second surgery, remembering I was 20 miles away during her first surgery. I was thankful.

And the first time I got to put those ruffle socks on her little feet, which were reformed and finally free of plaster casts. I was thankful.

On January 5, Brooklyn will go in for an MRI to evaluate whether or not her anatomy is conducive to a brain surgery we are now considering for her. I can tell you now, that on that day, I will be thankful.

I will be thankful for the medical professionals that will be taking care of my baby. I will be thankful for the family that will ensure my other two children are enjoying their day like any other day. I will be thankful for a God who knows the outcome of that test and every other minute of my Brooklyn’s life here on earth.

Yes, I will be thankful.

Not because I am that faithful — but because God is that faithful.

No, I have no idea what the future holds for my Brooklyn, but I will forever be thankful that some day, the God who carried her throughout her life and mine, will lovingly embrace her as she runs into His arms.

Copyright 2010, Lisa Bonnema

“Be thankful in all circumstances, for this is God’s will for you who belong to Christ Jesus.”
1 Thessalonians 5:18

IMG_4179

Wish Away

November 13, 2010 by Lisa

I get lost in her face. A lot.

The warm, soft cheeks. The sweet smell. The closed eyelashes that personify peace…perfect peace.

You mamas know what I am talking about. Those stolen moments when they fall asleep and fit just so on your chest. The warmth of their body against yours and the overwhelming realization that this piece of Heaven is yours. All yours.

Tonight, as the glow of the TV screen danced in the background, I breathed her in. I tried to breathe in the peace of her slumber, but instead I was left with a confusing mix of love and sadness.

I can’t possibly express to you just how much I love my Brooklyn, but I can tell you that I love her so much, it truly hurts.

And if I am being honest, sometimes I wonder if I will ever love her without hurting a little. Not because I wish something else for me, but because the more I get to know her, her personality, the more I wish something else for her.

I thought this whole acceptance thing would be easier once she got here, but in many ways, it is harder.

As most of you know, Brooklyn got her casts off this week. I was so excited — we all were. We decorated her casts the night before — the girls had a ball! — and we celebrated with brownies and ice cream and a bath when they were officially off.

Now we have bare legs and toes, and for that I am truly grateful. But she also has to wear AFO braces that hide those piggy toes during the day and a full body cast that we have to squeeze her into every time she sleeps.

And, well, that stinks.

I want to be selfish and just have her legs and toes all the time. I want her to feel me tickling her feet. I want her to be able to do one of her most important baby jobs comfortably and not in a plastic mold that leaves her totally immobile on her backside.

I want SO MUCH for her. So much, that it hurts. A lot. And this is only the beginning of our journey.

As I reflected on my emotions tonight, I realized that maybe all that hurt is a sign that I’m looking at this wrong. That I NEED to get lost in her face and not get distracted with wishing away the plastic.

After all, the plastic is of this world. But her face, her legs, her toes — those are of God.

I need to rejoice in His creation.

The hurt is of this world — and it is temporary. But my unconditional love for her is of God — and it is eternal.

I need to rejoice in His promise.

Yes, I wish a lot for my baby. But I can’t wish away God’s plans. Nor should I. He has big plans for my sweet Brooklyn, and I want to be a part of that.

I will love, and I will hurt. But I will strive to do a little less wishing and a lot more rejoicing, for some day my child will have more than I could ever wish for her. Forever.

Rejoice in the Lord always. I will say it again: Rejoice! 
Let your gentleness be evident to all. The Lord is near. Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
Philippians 4:4-7
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I am a great many things: a "mom in progress" to three beautiful girls; a wife to my favorite person; a daughter of Christ; a writer; a lover of good coffee; a recovering perfectionist; and a hopeful romantic learning to find peace and joy in God alone. This is my story and His story.

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