Lisa Bonnema

Mom. Writer. Speaker.

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Managing our Mess

February 4, 2011 by Lisa

I’ve been angry…at God.

There I said it.

But not to worry: He knows it; we’ve talked about it; and we’re working on it.

Well, I’m working on it. Thankfully, He keeps loving me anyway.

Now, let me clarify. I’ve said many times that I have never been mad at God for giving our family a child with Spina Bifida. That is still 100% true. I am not angry about the Spina Bifida.

I’ve been angry about, well, everything else.

Let me explain. Everyone always talks about accepting your “new normal” when you have a child with special needs. And I got that. Or at least I thought I did.

I have totally accepted the fact that our “new normal” includes things that most mothers and families don’t have to deal with — constant doctor appointments, physical therapy, medication, catheters, surgeries, etc., etc. These things help Brooklyn, so I can deal with all that. (Most of the time.)

What I didn’t realize is that our “new normal” ALSO includes the things most mothers and families DO have to deal with — money issues, job stresses, lack of sleep, allergies, illness, etc., etc.

I guess I somehow thought we’d get a “pass” on some of the everyday stuff now that we had this new challenge in our lives. Like suddenly a money tree was going to fall out of the sky to pay for all the medical expenses. Or HGTV was going to show up at my doorstep and decorate my new(ish) house for free. Or that Jeff and I would become the world’s best parents and know exactly how to handle a very sassy 3-year-old or a kindergartener that still has not outgrown full-out meltdowns.

Not so much.

I didn’t realize all of this at first. It wasn’t until some soul searching and some tearful discussions with the Man upstairs that I realized why I was in such a funk. Honestly, I guess I thought I deserved an easier life because of our challenges.

But of course, that is not true. I don’t deserve an “Easy Button” any more than anybody else does. That isn’t the way life works.

Life is messy.

Brooklyn is not a perfect baby. She cries a lot and most likely won’t let you hold her. She doesn’t sleep that great at night, has zero interest in cereal, and often pees through her outfit 10 seconds after she is fully dressed. She has reflux issues (like her sisters), and I have to avoid certain foods so she can better tolerate my breastmilk.

Granted, she is a rock star in many ways (and has the most adorable smile), but she is still a baby. A gooey, cranky, diaper-dirtying baby. But, really, why wouldn’t she be? That’s the way she should be. She is human, and she is wonderfully and uniquely made.

Even Jesus’ life was messy. Look at his birth. Yes, we all know there was no room at the inn, but we still glamorize the whole event. Nativity scenes depict a warm cozy stable full of hay and adorable animals surrounding a peacefully sleeping baby. But the truth is, Joseph and Mary were probably in a cold, dark cave — a common place to keep sheep and other animals in those days. A cave full of manure and animals that haven’t been bathed and were probably not very understanding of the whole birthing process. Not exactly the ideal birthing scenario. Yet out of that messy situation, God brought the greatest gift of all.

So I am learning to appreciate our mess — all of it —  and I felt it only fair to share that with you. I could hide behind this blog and pretend that life at our house is perfect and happy and full of adorable baby smiles all the time, but that’s not true. It is often chaotic and sticky and most definitely messy.

But I refuse to turn this house into a pit of pity. Perspective is everything, and as long as I am talking to Him, reading His word, and accepting His grace, I am convinced this mess is going to turn out to be the life He planned for us.

Until then, I will do my best to enjoy the ride and dive straight into the goo if I have to. He will clean it up.

“Create in me a clean heart, O God. Renew a loyal spirit within me.”
Psalm 51:10

“And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast.”
1 Peter 5:10

Soul Searching

January 24, 2011 by Lisa

I am strong.
I can do this.
I am weak.
I can feel this.
I am hopeful.
I believe.
I am forgiven.
I question.
I am blessed
Because of this.
I hurt
Because of this.
I understand
Most of the time.
I am confused
A lot of the time.
When I am less,
He is more.
When I am more,
He is glorified.
When He is glorified,
It is worth it.

Wisdom

December 16, 2010 by Lisa

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When we brought Brooklyn home the other day, the first thing Emma did was kiss the stitches on her head. She didn’t grimace like I did; she wasn’t scared. She just gave her sister a little love because, well, that’s what big sisters do… especially when they haven’t seen their little sister in a few days.

When Kendall saw the shunt for the first time, she said, “That’s so cool” and giggled. She gave her “Brookie” a quick hug and skipped off to play.

I know they don’t totally get it, but in many ways, they get it so much more than I do.

They teach me so much, these little ones.

Love. Acceptance. Peace.

This isn’t easy, but it doesn’t have to be complicated.

I am learning that life isn’t always about totally “getting it” because let’s face it, sometimes “it” just doesn’t make sense at all. And many times, “it” just isn’t fair.

“It” is about finding the love, the joy, the giggle.

And then trusting that in time, the understanding will come.


“For my thoughts are not your thoughts, neither are your ways my ways,” declares the LORD. “As the heavens are higher than the earth, so are my ways higher than your ways and my thoughts than your thoughts.”

Isaiah 55:8-9

A Thanksgiving Testimony

November 25, 2010 by Lisa

(*This is the testimony I shared at our church service today.)

Good morning, everyone. Happy Thanksgiving!

Today, I feel God called me to tell you about something very important in my life that has filled my heart with more Thanksgiving than I knew possible.

Socks.

Yep, today I am thankful for socks. Actually, white socks with hot pink ruffles, green polka dots, and the embroidered letter “B.”

A year ago, I may have thought these socks were cute, but I never would have imagined the overwhelming sense of gratitude I would feel when I finally got to put them on my 3-month- old baby.

Such a small thing, socks. But as I have learned these past 8 months, God often reveals himself in the small things just as much as He reveals Himself in the big things—if you are paying attention, that is.

You see, 8 months ago my husband and I experienced what I guess most would say is a “big thing.” During a routine ultrasound, we learned that our third child, Brooklyn, had Spina Bifida. For those of you that don’t know, it’s a neural tube defect that affects the central nervous system. Basically, when our baby was forming, her spinal cord failed to close properly, leaving an open defect in her back that exposed her spinal cord and caused an irregular flow of brain and spinal fluid.

The news, of course, was a huge surprise. We had two very healthy, active little girls at home already. We barely knew what Spina Bifida even was, but we quickly learned more than we ever wanted to know: Our baby may never go to the bathroom on her own. A build-up of fluid in her brain could cause cognitive challenges. She may never walk.

Big, big things we never thought would happen to us. But they did, and I can honestly stand here and tell you that I have never been mad at God about that.

From the beginning, I have felt this overwhelming peace that this is part of God’s plan—or, better yet, that He was going to use it for His glory.

Even that first night, when I lay in bed, sobbing for hours and hours, I felt God was right there with me—crying. It was the worst night of my life, yet knowing that God was in control, that He knew this was going to happen, made me cling to Him and His promises like never before. My heart was broken, yes, but when the morning came, God picked me up and, as I like to say—our journey began.

What I experienced the next 5 months of my pregnancy was nothing short of awesome. Prayer after prayer answered. Brooklyn’s legs, which at one point, were not moving, started to kick in my womb. We found physicians and specialists that were among the best in their fields. I had nurses PRAYING with me at doctor’s appointments. Hundreds of family members, friends, and strangers were sending notes of encouragement exactly when we needed them. Prayers of healing were being sent up, and my faith grew like never before. God was guiding me through every day—the good and the bad. He provided my heart with constant encouragement and gave me wonderful images of Hope that will forever be imprinted in my heart. He gave me strength to share our story, but more importantly, used my weakest moments to help me understand.

It was His plan.

And then she was born. Brooklyn Hope Bonnema. I had been so anxious to meet her, to hold her in my arms. But, of course, I couldn’t at first. In fact, I wouldn’t hold her in my arms for 6 whole days. The longest days of my life.

But in those 6 days – and every day since then—I have learned to be thankful for the little things.

Like the first time I got to feed her a bottle. Yes, she was hooked up to several machines, and was lying on a portable sleeping table, but she didn’t need an IV and she was swallowing on her own. I was thankful.

Or the first time a nurse allowed me to hold her. Yes, she was carefully positioned on a foam bed that separated her from my lap, but I was able to kiss her and feel the weight of her body on mine. I was thankful.

Or the first time I got to burp her. Yes, she had to be propped up sideways because her left leg was deformed and her back was still healing from her surgery, but I could kiss her warm head and take in her sweet smell. I was thankful.

The first time we brought her home. 18 days after she was born. We were all under one roof. Finally. I was thankful.

The first time I got to wash the upper part of her left leg after her casts corrected its position. I was thankful.

The first time I saw her beautiful smile. A smile that told me the fluid in her brain was not causing major damage. I was thankful.

The first time I held her after she came out of her second surgery, remembering I was 20 miles away during her first surgery. I was thankful.

And the first time I got to put those ruffle socks on her little feet, which were reformed and finally free of plaster casts. I was thankful.

On January 5, Brooklyn will go in for an MRI to evaluate whether or not her anatomy is conducive to a brain surgery we are now considering for her. I can tell you now, that on that day, I will be thankful.

I will be thankful for the medical professionals that will be taking care of my baby. I will be thankful for the family that will ensure my other two children are enjoying their day like any other day. I will be thankful for a God who knows the outcome of that test and every other minute of my Brooklyn’s life here on earth.

Yes, I will be thankful.

Not because I am that faithful — but because God is that faithful.

No, I have no idea what the future holds for my Brooklyn, but I will forever be thankful that some day, the God who carried her throughout her life and mine, will lovingly embrace her as she runs into His arms.

Copyright 2010, Lisa Bonnema

“Be thankful in all circumstances, for this is God’s will for you who belong to Christ Jesus.”
1 Thessalonians 5:18

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I am a great many things: a "mom in progress" to three beautiful girls; a wife to my favorite person; a daughter of Christ; a writer; a lover of good coffee; a recovering perfectionist; and a hopeful romantic learning to find peace and joy in God alone. This is my story and His story.

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